Hello.
This blog that I love very much is now an ex-blog... sort-of... it continues over at revdlesley.net. Please do come and join the conversation there.
Lesley x

Wednesday, 29 September 2010

Symphysis Pubis Dysfunction (SPD)


I mentioned in passing that I had suffered from Symphysis Pubis Dysfunction (SPD) in a post here, and I am really grateful to Crimperman for explaining something to me. But let me first explain about SPD. I am hyper-mobile (double jointed) and have always been able to do tricks, like make my elbows bend the wrong way and cause people to make satisfying 'eeeeww' noises. Hyper-mobile people like me have too much elastin and not enough collagen which means they are wonderfully flexible but bruise easily and bleed much if cut. Not really a problem for me, (except for the odd bit of anaemia, lots of sprained ankles, oh and a dislocated shoulder I suppose), until I got pregnant and all those ligament loosening hormones loosened my ligaments, which were already loose enough thank-you very much.

During my third pregnancy, the bones in my pelvis (which are meant to be held together solidly by masses of ligaments) decided to move, and it was dreadfully painful, to the extent that eventually I couldn't walk. I felt crushing shame, and I never really understood why, until I read this comment on the post I mentioned above:
My wife also had SPD for both our children, being housebound for the final month of the 1st pregnancy. I recall her fear when going to the ante-natal classes. The reaction from the other mothers was tangible. Ranging from shock to fear (will this happen to me) to relief (glad that it hasn't) and then obvious guilt and awkwardness.
That guilt and awkwardness was also found in us. We didn't want to be the ones who caused others to feel so awkward. Nobody knew how to react around us and this made it all the worse. Such things tend to cause those awkward and prolonged silences and I wonder whether "Society" also prefers not to know because they just don't know how to react.
This reminds me of a pamphlet I read was given by a counsellor during my first pregnancy, when it became evident that the child was dying in my womb. Each page contained bad news as to what a late abortion was like. But one page told me that people would avoid me, they would cross the road after the abortion, pregnant women would consider me bad luck and my presence would make them uncomfortable. It said that even my best friends would avoid telling me when they got pregnant. It all came true. It is tough when you suffer, even tougher when you then get ignored. People say that they don't know what to say, trust me whatever you say is better than saying nothing.
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7 comments:

Gurdur said...

Nothing to say, just hugs. By the way, it's a bit similar with going blind and suchlike, when years ago I was rendered blind (totally blind for a period of 8 months, lead-up period of around 6 months before that of ever-increasing blindness), it was pretty much like that, being avoided. People are irrational.

Crimperman said...

Thanks Lesley. Another well written and sensitive piece. I'd like to clarify that I was not excusing people for saying nothing to us just trying to explain it.

Also I know what you mean with your closing statement but believe me saying something rather than nothing only works if the intent is not to harm. Spiteful and hurtful comments would be much better kept to yourself.

Also if you do say something be prepared that a) you may not be the first person to say it, b) the person you are saying it may not be in the best of moods and c) they usually don't mean it if they snap back.

And thus we come back to why it becomes awkward to know what to say. In general though I agree: if you are trying to be helpful it's better to risk it and say something than not and if someone is trying to be helpful we recipients should try to remember that a little more - particularly if we (and/or they) are Christians.

I'm reminded of something I wrote myself a while back on how to react when you are questioning your faith and the goodness of God.

Lesley said...

Thanks Gurdur :)

Hi Crimperman.. added your blog to my blog role and nicked something for tomorrow! :) Yes. What you say is true of course. One particularly crass comment when I was depressed cos I lost the baby was 'It was probably for the best'... mmmm.... for the best... mmmm....

UKViewer said...

Lesley,

Thank you for this. I must admit that I had never heard of SPD, and just how desperate a condition it is.

I can see that to be treated as if you are the problem, not the condition must be disheartening and hurtful. Thank God I had not had that experience so far in my life.

I wonder sometimes the purpose of suffering and why it is a human condition - than I look at the cross and it becomes clear.

One day, all will be well.

Lesley said...

Yeah.. was crap at the time.

Thing is when you have little ones it seems particularly bad timing (although I dunno what would be good timing!)

Thanks for your thoughts

L

Crimperman said...

I think the problem is that (usually) SPD goes away about a week or two after the birth. My wife went from unable to walk (really) for the last.month of pregnancy to fully mobile in about 8 days. But yes SPD is not nice (and I wasn't even the one in pain).

Lesley: thanks for adding me. I've just scheduled a blog related to this so I hope I haven't stolen ant thunder :)

Lesley said...

Goodness, that was brilliant for her :) I was in terrible pain for the first year after the birth, and then I did get help from a good physio, but I still suffer a bit now, eleven years later!

:) ok

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